DMD Pathfinders is delighted to launch our Nutrition Guide for adults with Duchenne. We have worked with health professionals from around the world to pull together existing best practice and experiences of adults with DMD into a useful resource. User experiences were gathered from a survey of 91 adults and families, many of whom have volunteered to share their stories. We will be distributing the guide throughout adult DMD clinics in the UK.
The guide looks at:
• The Nutrition Timeline
• A Healthy Diet
• Nutraceuticals and Dietary Supplements
• Maintaining a Healthy Weight
• A Good Blended Diet (Case Study)
• Eating with DMD
• Chewing & Swallowing Problems
• Ventilation & Nutrition
• Feeding Tubes
• Managing Bowels & Constipation
• Common Gastrointestinal Problems
• Nutrition Top Tips
You can access the online guide here: http://www.dmdpathfinders.org.uk/wp-content/uploads/2016/11/DMD-Pathfinders-Nutrition-Guide.pdf
Please get in touch with us if you would like to order a printed copy, or have feedback about the guide to share with us. We can only produce these guides with your help, sharing your stories and fundraising for us to cover design and printing costs. If you have benefited from this guide please consider donating or volunteering your time to help us continue this work.