DMD Pathfinders was co-founded in 2014 by Mark Chapman (now Chair) and Jon Hastie (now CEO) after working together for several years on a transition programme for young people with Duchenne, run by Action Duchenne. Through this project, a need was identified for an independent organisation to act as the voice of adults, sharing information and campaigning for better support and services.
Read more about our staff and trustees below:
Jon Hastie is the CEO and one of the co-founders of DMD Pathfinders. Jon lives independently in West Sussex in his own flat, supported by a team of PAs. Jon completed his PhD in 2008 and has since worked for a number of disability charities and as a local government officer. Jon enjoys gaming, travel and cocktails!
Mark Chapman is the Chair of trustees and one of the co-founders of DMD Pathfinders. Mark lives independently in Edinburgh in his own flat, employing a team of PAs to support him. Mark has volunteered for many years for a range of disability and neuromuscular charities. He has an active social life and enjoys travel, theatre and spending time with friends.
Tyran Hawthorn has been a trustee of DMD Pathfinders since 2017 and is now Vice Chair of the Trustees. Tyran lives in Hampshire and is a professional photographer, holding a BA Honours degree in Photography from Portsmouth University. Tyran has been an active volunteer for neuromuscular charities for many years. Tyran enjoys spending time with friends and family.
Daniel Baker has been a trustee of DMD Pathfinders since 2016. Daniel lives in Gloucestershire and is a keen amateur photographer, blogger and actor. Daniel holds a BSc(Hons) in Applied Physics from Oxford Brookes University. Daniel enjoys gaming, comics and spending time with family and friends.
John Ashby has been a trustee of DMD Pathfinders since it started in 2014. John lives in Coventry and plays an active role in DMD Pathfinders, helping with our social media activity, and has presented at a number of events and conferences.
Jon Gilmour became a trustee of DMD Pathfinders in 2018. Jon lives in Hampshire with his assistance dog, Uri, having recently completed his PhD in Inter-Faith Studies. Jon enjoys music and spending time with friends.
Ryan Worth has been a trustee of DMD Pathfinders since it started in 2014. Ryan lives in Crewe in his own flat, supported by a team of PAs. Ryan has an active interest in politics and is the Crewe & Nantwich Labour Party Disability Officer. Ryan enjoys comedy, music and spending time with friends.
Alan Pockley has been a trustee of DMD Pathfinders since it started in 2014. Alan lives in South Shields in his own flat, and has a keen passion for football, gaming, and cosplay.
Ravi Mehta has been a trustee of DMD Pathfinders since 2015. Ravi lives in London and volunteers for a number of neuromuscular charities. Ravi loves football and nights out.
Celine Barry has been a trustee of DMD Pathfinders since it started in 2014. Celine worked on the award-winning taking charge project at Action Duchenne from where DMD Pathfinders first started, and has a nephew with Duchenne. Celine loves the countryside and walks with the dog!