DMD PATHFINDERS HELPS TEENAGERS AND ADULTS WITH DUCHENNE MUSCULAR DYSTROPHY LIVE LONGER, HAPPIER LIVES

News

DMD Pathfinders Nutrition Guide now out!

DMD Pathfinders is delighted to launch our Nutrition Guide for adults with Duchenne. We have worked with  health professionals from around the world to pull together existing best practice and experiences of adults  with DMD into a useful resource. User experiences were gathered from a survey of 91 adults and families, many of whom have volunteered to… Read more »

Share your attitudes towards DMD research in our new survey

DMD Pathfinders and Duchenne UK are carrying out this survey into attitudes towards DMD research among adults with the condition. This will help demonstrate to charities, pharmaceutical companies and regulators whether there is a need for adult trials, and will help us to understand what adults would like research to focus on as well as… Read more »

Join us at our NMD Fest event on 18-19 July

NMD Fest – 18-19 July, at the NMC, Winsford, Cheshire. DMD Pathfinders and the Neuromuscular Centre are hosting NMD Fest, a two day event to link up adults with DMD and other neuromuscular conditions to learn from each other and have some fun. Find out about assistive technology solutions, sign up to our peer leaders… Read more »